Earmark - Expansion of a national data collections system on the needs of end-of-life and terminally ill patients.

Agency:		Department of Health and Human Services
Bureau:		Administration on Aging
Account:		Aging services programs (75-0142)
Certifying Official:		Director, Budget and Finance
Contact Information:		http://WWW.HHS.GOV 202-720-3210

Expansion of a national data collections system on the needs of end-of-life and terminally ill patients.

1 recipient will receive $99,000. This is a first-time earmark.

Year Enacted: 2005

Code: N/A

Description: The Carolinas Center for Hospice and End of Life Care will conduct a one-year project to develop a comprehensive Internet-based resource for accessing data about the epidemiology and experience of end-of-life in the United States. During 2004/2005, The Carolinas built the Epidemiology of Dying and End of Life Care Experience (EDELE) website that provides ready access to data about decedents and end-of-life for use by healthcare providers, health planners, and advocacy organizations for clinical practice improvement, informed policy change, and planning. This project will increase the utility of the website by including data for two to three more states, developing a cost-effective mechanism to add more states in the future; and including information about and access to data not currently posted on the website.

Beneficiary/Recipient	Amount ($K)	Program	Type	Address
Carolinas Center for Hospice & End of Life Care (101733277)	$99	Program Innovations	For-Profit	2400 Weston Pkwy. Cary, NC
Comment: N/A

Citation

Source: Appropriations Report Language - Conference

Reference: P.L. 108-447, H. Rept. 108-792

Citation Excerpt: Carolinas Center for Hospice and End of Life Care, Cary NC for development of a national data collection system on the needs of end-of-life and terminally ill patients.

Citation Comment: N/A

Last Modified: 16-Apr-2007